Building Collaborative Bridges between the Western & Eastern Hemispheres

A non-profit 501(c)(3) organization connecting rare disease patients of Asian-Indian origin with global clinical trials

Building Collaborative Bridges between the Western & Eastern Hemispheres

A non-profit 501(c)(3) organization connecting rare disease patients of Asian-Indian origin with global clinical trials

Our Mission

Advocate for the inclusion of the Indian subcontinent in global clinical trials and enable access to global trials as an option for patients of Indian origin living with rare diseases.
Connect patients living with rare diseases in India and the USA with patient advocacy groups, research, clinical trials, and international Consortia such as IRDiRC, RDI, Global Genes, NORD, RARE-X, and UDNI.
Collaborate for public health policy development & implementation such as Rare Disease and Orphan Drug Policies between the USA, India, and other countries.
Bring together stakeholders of rare diseases by organizing national and international conferences.
Facilitate cross-border research collaborations for genetic disorders.