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    • Home
    • About Us
      • About Us
      • Founder's Corner
    • Programs & Events
      • Upcoming Events
      • ROAR4RARE - Greenville SC
      • Art4Rare 2021
      • ART4RARE 2021 Gallery
      • RDD at IndoUSrare
      • First Anniversary
      • Webinar Series
      • Rare-X
      • Natyaswara
    • Patients Alliance
      • Application
      • Members
      • Program Info
    • Donate
    • Contact Us
    • Newsletters
  • Home
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Building Collaborative Bridges between the Western & Eastern Hemispheres

Building Collaborative Bridges between the Western & Eastern HemispheresBuilding Collaborative Bridges between the Western & Eastern HemispheresBuilding Collaborative Bridges between the Western & Eastern Hemispheres

A non-profit 501(c)(3) organization focused on accelerating diagnostics and therapies for rare diseases

Building Collaborative Bridges between the Western & Eastern Hemispheres

Building Collaborative Bridges between the Western & Eastern HemispheresBuilding Collaborative Bridges between the Western & Eastern HemispheresBuilding Collaborative Bridges between the Western & Eastern Hemispheres

A non-profit 501(c)(3) organization focused on accelerating diagnostics and therapies for rare diseases

Our Vision

Indo-US Organization for Rare Diseases (IndoUSrare) is a 501(C)(3) tax-exempt non-profit organization focused on accelerating therapies for rare diseases by building collaborative bridges between the USA and the Indian subcontinent for education, advocacy, & research. 


Our Mission

  1. Advocate for the inclusion of the Indian subcontinent in global clinical trials and enable access to global trials as an option for patients of Indian origin living with rare diseases.
  2. Connect patients living with rare diseases in India and the USA with patient advocacy groups, research, clinical trials, and international Consortia such as IRDiRC, RDI, Global Genes, NORD, RARE-X, and UDNI.
  3. Collaborate for public health policy development & implementation such as Rare Disease and Orphan Drug Policies between the USA, India, and other countries.
  4. Bring together stakeholders of rare diseases by organizing national and international conferences.
  5. Facilitate cross-border research collaborations for genetic disorders.

More about us

Latest News and Events

A Critical Gap to Fill for the Rare Disease Community

A personal note from the Founder

Hi, I am Harsha Rajasimha, Founder and Chairman of IndoUSrare. My first encounter with a rare disease was in 2004 analyzing the next-generation sequencing (NGS) data of bacterial and viral genomes including the Corona Virus. Later in 2010, while I was a Bioinformatics Data Scientist at the neurobiology, neurodegenerati

Full Story...

Help Our Cause

Indo US Organization for Rare Diseases (EIN: 84-3794099) is a non-profit 501(c)(3) tax-exempt organization.  Your support and contributions through generous donations will help us to a great extent! 

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Connect With Us

References

Reference Articles


  • https://timesofindia.indiatimes.com/blogs/voices/unwinding-the-open-data-debate-for-rare-diseases/
  • https://rare-x.org/assessing-the-rare-disease-landscape-in-india/
  • Rajasimha HK, et al., Organization for Rare Diseases India – Addressing the Challenges and Opportunities for Indian Rare Diseases’ Community; Genetics Research 2014.
  • https://biobuzz.io/in-conversation-dr-harsha-k-rajasimha-indousrare/
  • https://globalgenes.org/2020/02/06/rare-leader-harsha-rajasimha-ceo-indousrare/
  • https://www.linkedin.com/pulse/announcing-indousrare-harsha-k-rajasimha/
  • https://www.facebook.com/harshakarur/posts/1015936121709496
  • https://www.linkedin.com/pulse/announcing-indousrare-harsha-k-rajasimha/
  • https://stories.possiabilities.com/social-entrepreneur-on-a-mission-to-bridge-the-clinical-research-divide-between-the-usa-and-india-with-advocacy-and-technology/ 


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