Patients Alliance Members 2021
The Aarskog Foundation
The APS Type 1 Foundation Inc.
The Aarskog Foundation
ALD Connect, Inc.
The APS Type 1 Foundation Inc.
The Aarskog Foundation
The APS Type 1 Foundation Inc.
The APS Type 1 Foundation Inc.
The APS Type 1 Foundation Inc.
Cure VCP Disease, Inc.
Cure VCP Disease, Inc.
The APS Type 1 Foundation Inc.
CSNK2A1 Foundation
Cure VCP Disease, Inc.
Defeat MSA Alliance
Defeat MSA Alliance
Cure VCP Disease, Inc.
Defeat MSA Alliance
Ehlers-Danlos Society
Indian Patients Society for Primary Immunodeficiency (IPSPI)
Families of Spinal Muscular Atrophy India
Families of Spinal Muscular Atrophy India
Indian Patients Society for Primary Immunodeficiency (IPSPI)
Families of Spinal Muscular Atrophy India
Indian Patients Society for Primary Immunodeficiency (IPSPI)
Indian Patients Society for Primary Immunodeficiency (IPSPI)
Indian Patients Society for Primary Immunodeficiency (IPSPI)
Indian Rett Syndrome Foundation
International Pemphigus Pemphigoid Foundation
Indian Patients Society for Primary Immunodeficiency (IPSPI)
International Pemphigus Pemphigoid Foundation
International Pemphigus Pemphigoid Foundation
International Pemphigus Pemphigoid Foundation
Lightning and Love Foundation
International Pemphigus Pemphigoid Foundation
International Pemphigus Pemphigoid Foundation
Lysosomal Storage Disorders Support Society
Lysosomal Storage Disorders Support Society
Lysosomal Storage Disorders Support Society
MEPAN Foundation
Lysosomal Storage Disorders Support Society
Lysosomal Storage Disorders Support Society
Neuromuscular Disease Foundation
Lysosomal Storage Disorders Support Society
Parent Project Muscular Dystrophy
Parent Project Muscular Dystrophy
Rare Autoinflammatory Conditions' Community- UK (RACC-UK)
Parent Project Muscular Dystrophy
Rare Autoinflammatory Conditions' Community- UK (RACC-UK)
Rare Autoinflammatory Conditions' Community- UK (RACC-UK)
Rare Autoinflammatory Conditions' Community- UK (RACC-UK)
Remember The Girls
Rare Autoinflammatory Conditions' Community- UK (RACC-UK)
Rare Autoinflammatory Conditions' Community- UK (RACC-UK)
STXBP1 Disorders
The Snyder-Robinson Foundation
STXBP1 Disorders
Team Telomere
The Snyder-Robinson Foundation
STXBP1 Disorders
The Snyder-Robinson Foundation
The Snyder-Robinson Foundation
Wishes for Elliott : Advancing SCN8A Research
Wishes for Elliott : Advancing SCN8A Research
Wishes for Elliott : Advancing SCN8A Research
Wishes for Elliott : Advancing SCN8A Research
